Posts tagged #disability

Today On The Bias: The Geek’s Guide to Disability

I’ve got a post up on The Bias today about disability, how it’s represented in genre fiction, and how that representation differs from the lived realities of non-fictional disabled people, and political frameworks that guide our discourse about disability. Check it out: The Geek’s Guide to Disability.

Posted on February 16, 2016 .

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Asking About My Cane

A .5lb collapsible carbon fiber in sparkly indigo. It might be the most stylish thing I own.

A .5lb collapsible carbon fiber in sparkly indigo. It might be the most stylish thing I own.

If you follow me on twitter, you might have seen me singing the praises of my shiny new cane a couple weeks back.

I have a neurological condition that causes, among other things, dizziness. I bought a cane because having a third foot is really handy when I'm feeling unsteady.

Since I'm not dizzy every day and not in the office every day, my cane didn't make its first appearance at the office until this Wednesday.

Wednesday looked a lot like this:

for colleague in colleagues:
  curiosity = random.randint(1,20)
  if curiosity > 5:
    print(colleague.name() + ": what happened?")
    print("me: nothing, I just have a neurological condition\
          that causes dizziness.")
  time.sleep(600)

(For the non-parselmouths among you, that means I was answering the same question all day).

I don't particularly mind answering questions about my cane-use. It's natural to be curious when someone you work with suddenly shows up with an assistive device. If I had it to do again I would have dropped it in the office slack to get the explanation out of the way all at once, but I didn't find the question invasive or uncomfortable.

But sometimes, these questions are uncomfortable. Some people don't want to talk about their health or disabilities, especially at work. People with disabilities have good reason to fear discrimination. Even when we're not concerned about that, sometimes we don't want to have to be the walking brochure for our conditions, or we're not up for well-intentioned advice from people who are not part of our medical team.

Which is why I want to give a shout-out to my boss, for asking the question a different way. Rather than asking "what happened," he asked, "are you okay?"

I replied, "yup!" and went on with what I was doing.

This phrasing conveys the same sentiment--an expression of polite concern--but it's much easier to answer without either supplying personal information or making things awkward. That's especially handy when there's a power differential in play that might make someone feel like they need to answer a question even when they don't want to.

As for the rest of my team: none of them pressed me for more information about my health or offered me unsolicited medical advice. They're pretty good at boundaries.

I say all this not as a means of giving my office ally cookies, but because I think the world would be a better place if more folks followed their example of how to talk to people about their disabilities. It's nice to work somewhere where I can use a cane when I need one without anyone making it weird.

Posted on May 22, 2015 .

All comments are subject to my Comment Policy.

On Glamorizing Depression

Author Jim C. Hines wrote an excellent post about depression on Tuesday. Unfortunately, while most of the comments are good, some of them are textbook examples of obnoxious things people say about depression ('be at peace with yourself?' What does that even mean?).

Hines took some time today to talk about unsolicited medical advice and why it's a problem, but I want to take a sec to talk about a different comment on the original post:

Depression can also be a catalyst for change. Many major changes in a persons life are accompanied with some depression. Depression can be an indicator of problems with society. Depression can inspire creativity. The glass is half full…
— Jeff, on Hines's "Depression."

While I'm doing pretty well these days, I've dealt with depression in the past. It's likely that I'll deal with it again. I've spent time medicated. I've spent time essentially non-functional. I've spent time going through the motions of normalcy even though it required an exhausting amount of willpower, only to have my exhaustion held up as a sign of my weak moral character.

Jeff's language about "major changes in a person's life" make it sound like he's talking about situational depression. While situational depression is real and difficult, it's a very different animal than chronic depression. Chronic depression tends to come in cycles. It can be beaten back, but never fully 'cured.' Advising people to see it as a 'catalyst for change' is, at best, insensitive.

What's actually bothering me about this comment, though, is the suggestion that depression can inspire creativity. People with depression hear this a lot. Tortured artists are part of our cultural zeitgeist. And while I'm sure that many of the people who trot out this line mean well, I want to take a moment to unpack why it's problematic.

First, we don't actually have a lot of evidence that depression 'inspires creativity.' We know that a small subset of people with depression have produced skillful and moving works of art. It does not automatically follow, however, that depression 'inspired' their art. It could be that they created in spite of their depression.

Even when people use art to help work through their personal demons, it still doesn't necessarily follow that their depression made them better artists. We don't know what they would have created if they weren't depressed.

Some people with cancer create incredible works of art, but most people know better than to tell them the 'glass is half full.' Rather, we appreciate what they're able to create in the face of their devastating disease, and mourn their deaths if their disease proves fatal.

Depression is also a potentially fatal disease, and glamorizing depression in artists trivializes that. It reduces artists who suffer from depression to martyrs for the cause of artistic greatness, as if their suffering is some kind of gift to the universe.

People with depression don't owe us their pain. They don't owe us their exhaustion, their anxiety, their boredom, or their anger. They certainly don't owe us art.

If they're able to find comfort or pleasure in artistic endeavors, good for them. If they're able to use creative work to process and heal, all the better. If their depression makes creating more difficult but they do it anyway because that's how they put food on the table, we should respect that work without romanticizing their struggles. And if they need to spend time focusing on their own health and not making anything, then good on them for taking care of themselves, and they should get to do so without bystanders telling them 'the glass is half full.'

Artists with depression are whole people whose struggles and triumphs do not belong to the rest of us. They deserve to be recognized for their hard work and talent without having their accomplishments reduced to a symptom of their disease.

Posted on March 27, 2015 .

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